What is a prevention registry?

Alzheimer’s Prevention Registries are databases containing the contact information, and sometimes limited medical information, for individuals willing to consider participating in trials that are designed to prevent (as opposed to treat) the disease.  These trials may involve lifestyle interventions, such as exercise or diet modifications, or medications. Participation in a trial is not a requirement for joining the registry.  Most registries communicate with their participants regularly and serve as effective resources for staying up-to-date with the latest research. 
National: Alzheimer’s Prevention Registry
National registries can be helpful to researchers seeking to reach a very diverse population. They may be of interest to participants who want to learn more about prevention trials happening in other parts of the country, as well as locally. The Ryan Institute has partnered with the Banner Alzheimer’s Institute in Arizona to support the national Alzheimer’s Prevention Registry, a database of adults 18+ who are interested in learning more about AD and AD prevention trials taking place throughout the country.  Find out more here
Local: Rhode Island Alzheimer’s Disease Prevention Registry
Local registries target a smaller population – typically one state – and are particularly attractive to participants who wish to stay informed about trials, research and events happening close to home. The Ryan Institute is partnered with Rhode Island Hospital to support the Rhode Island Alzheimer’s Disease Prevention Registry.  This local initiative allows participants to meet with registry coordinators in Providence or Kingston for memory evaluations and information regarding prevention trials taking place in Rhode Island. Find out more here